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Initially, some workers said, they thought the cancer institute might be spared. HHS Secretary Robert F. Kennedy Jr. has called chronic disease 窶 cancer is one 窶 窶彗n existential threat窶 to the country. Cancer research, with multiple NCI-funded breakthroughs in genetics and immunotherapy, has sidestepped the political minefields around other public health issues, like vaccination.
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窶弃eople who care about cancer might be the biggest lobby in the country,窶 said Paul Goldberg, editor and publisher of The Cancer Letter, which has monitored oncology science and policy since 1973.
Count Mike Etchamendy, 69, of Big Bear Lake, California, as part of that lobby. Since 2013 he窶冱 flown to the East Coast scores of times to participate in five clinical trials at the cancer wing of NIH窶冱 Clinical Center.
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窶弋hey call it the House of Hope,窶 Etchamendy said. Between drugs, therapeutic vaccines, and expert treatment for his rare bone cancer, called chordoma, he said, he believes he窶冱 gained at least 10 years of life. He窶冱 proud to have served as a 窶徑ab rat for science窶 and worries about NCI窶冱 future.
窶弃eople come from all over the world to learn there,窶 Etchamendy said. 窶弸ou cut funding there, you窶决e going to cut major research on cancer.窶
In response to a list of detailed questions from KFF Health News about the cuts and chaos at NCI, HHS spokesperson Andrew Nixon said the reporting amounted to a 窶彙iased narrative窶 that 窶徇isrepresents a necessary transformation at the National Cancer Institute.窶 Nixon declined to elaborate but said research into cancer and other health conditions continues to be a high priority 窶彷or both NIH and HHS.窶
窶弩e are refocusing resources on high-impact, evidence-based research 窶 free from ideological bias or institutional complacency. While change can be uncomfortable for those invested in the status quo, it is essential to ensure that NCI delivers on its core mission,窶 he said.
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